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Collecting sexual orientation and gender identity data in electronic health records : workshop summary [E-Book]

By:

Alper, Joe [author.]

Contributor(s):

Publisher: Washington, D.C. : National Academies Press, [2013]Description: 1 online resource (1 PDF file (xiv, 73 pages)) : illustrationsContent type:

text

Media type:

computer

Carrier type:

online resource

ISBN:

9780309268042
0309268044
9780309268059
0309268052

Subject(s):

NLM classification:

WX 175

Online resources:

Kingston Hospital NHS Foundation Trust OpenAthens account holders click here for access

Contents:

Introduction and overview -- Clinical rationale for collecting sexual orientation and gender identity data -- Federal perspective on the use of electronic health records to collect sexual orientation and gender indentity data -- Existing data collection practices in clinical settings -- Developing and implementing questions for collecting data on sexual orientation and gender identity -- Closing remarks.

Abstract: In 2011, the Institute of Medicine (IOM) released the report The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding, the first comprehensive compilation of what is known about the health of each of these groups at different stages of life. This report also outlined an agenda for the research and data collection necessary to form a fuller understanding of this subject. One of the recommendations in this report was that, provided that privacy concerns could be adequately addressed, information on patients' sexual orientation and gender identity should be collected in electronic health records, just as information on race and ethnicity is routinely collected. Such data are essential because demographics provide the foundation for understanding any population's status and needs. This recommendation recognized that the possible discomfort on the part of health care workers asking questions about sexual orientation and gender identity, a lack of knowledge by providers about how to elicit this information, and some hesitancy on the part of patients to disclose this information may be barriers to the collection of meaningful data on sexual orientation and gender identity.

Holdings
Item type	Home library	Class number	URL	Status	Date due	Barcode
Electronic book	Stenhouse Library		Link to resource	Available

Title from PDF title page.

Includes bibliographical references.

In 2011, the Institute of Medicine (IOM) released the report The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding, the first comprehensive compilation of what is known about the health of each of these groups at different stages of life. This report also outlined an agenda for the research and data collection necessary to form a fuller understanding of this subject. One of the recommendations in this report was that, provided that privacy concerns could be adequately addressed, information on patients' sexual orientation and gender identity should be collected in electronic health records, just as information on race and ethnicity is routinely collected. Such data are essential because demographics provide the foundation for understanding any population's status and needs. This recommendation recognized that the possible discomfort on the part of health care workers asking questions about sexual orientation and gender identity, a lack of knowledge by providers about how to elicit this information, and some hesitancy on the part of patients to disclose this information may be barriers to the collection of meaningful data on sexual orientation and gender identity.

This activity by the National Academy of Sciences was supported in part by the National Institutes of Health under Contract Number HHSN263201200074I, with additional support from The California Endowment under grant number 20121371, and the California HealthCare Foundation, based in Oakland, California, under grant number 17133.